BBS UK Calendar Photograph Competition
11/5/2022
Do you take photos? Brilliant! We want to share them with the BBS family and friends. This year we are having a photo competition, producing the first ever BBS U.K. calendar.
Competition is open to all members of BBS U.K.
Not only is the Platinum Jubilee nearly upon us, but the sun is shining and though many of us are still being careful, it is great to be out and about and we want the 2023 calendar to reflect this new found freedom and enjoyment of our surroundings.
As long as YOU have taken the photo, we want you to enter.
Sporting events: last games of the football season, paddle boarding, tennis, cricket, park runs, motocross, cycling, scrambling, gymkhanas.
Outdoor events: your favourite spot in the garden, favourite family walks, National parks, historic houses and nature resorts, walking alpacas, picnics, the coast, canal towpath.
Home, work, school, anywhere.
Choose any time of day or weather that’s good for you: dawn, mornings, afternoon, sunset, night-time, sunshine, storms, snow, whatever it is all are welcome.
Whatever the subject, take some great photos and we will be choosing 12 for our calendar.
Closing date for digital electronic copies of the photos will be 26th August 2022
Send your photo in an email to admin@bbsuk.org.Uk along with your contact details, a short description of what the photo is of, and when/where it was taken.
All 12 photos will be on show at the conference, and the calendar cover photo will be the photo that gets the most popular votes from conference attendees.
Calendars will be available to buy from beginning of October 2022
Looking forward to sharing your memories.
Sarah Leadbetter wins RNIB's Campaigner of the Year
31/3/2022
BBS UK Sunflower Notelets now in stock!
8/11/21
Judged in September 2021, the Best Bloomin’ Sunflower competition was a huge success and many BBS UK members welcomed the glowing golden flowers into their gardens, allotments, and plant pots! Some were lemon, some orange and others a wonderful deep yellow. All were tall, some taller than others and the winner, Aneeba Ahmed, had sunflowers which reached the top storey of her house.
We have produced bright and cheery notelets (blank inside for your own use), for sale at £7.50 per pack of 10 (inc. p&p) which are now available to buy. To place an order, email christine.saxon@bbsuk.org.uk, stating your name, address and required number of packs.
Payment can be made via bank transfer to:
Acc Name: Bardet-Biedl Syndrome UK
Acc No: 20368253 Sort Code: 20-19-97
Please include your surname and 'Sunflower Cards' in the reference.
Alternatively, cheques can be made out to Bardet-Biedl Syndrome UK and sent to 1 Blackthorn Avenue, Southborough, Tunbridge Wells, Kent, TN4 9YA, marking the reverse of the cheque 'Sunflower Cards'.
BBS UK gains PIF TICK accreditation to become a ‘trusted information creator’
08/11/21
BBS UK has been awarded the PIF TICK – the UK’s only quality mark for print and online health information.
To become a ‘trusted information creator’, BBS UK had to undergo an assessment showing it met 10 key criteria.
This means you can be assured that what you are reading, watching or listening to is evidence-based, understandable, jargon-free, up-to-date and produced to the best possible standard.
Service Manager, Tonia Hymers said: “Gaining the PIF TICK shows we have a strong process for developing our health information resources. With so much information online it can be difficult to know what to trust. This quality mark is a quick and easy way for people to be assured our information is reliable and trustworthy.”
The PIF TICK, which launched in May 2020 is run by the non-profit Patient Information Forum (PIF).
In July 2021, a public website, www.piftick.org.uk, was launched to raise awareness of PIF TICK accredited members and help people find trusted health information.
The site also includes guides on topics including spotting false health information and understanding evidence.
PIF TICK manager Dan Wills said: “We are thrilled to welcome BBS UK to our ever-growing community of accredited PIF TICK members. Accurate, accessible, evidence-based information is key to increasing patient empowerment and improving health outcomes.”
The Body and Mind Toolkit for Adults and Children
BBS UK would like to extend our thanks to Bernie Stocks, Commissioning Manager, Highly Specialised Services, NHS England. Bernie has kindly shared some of the fantastic resources a number service leads, charities and stakeholder groups have provided to help people manage better through the second phase of the pandemic. Within the document you will find links to advice and information on wellness and sleep and diet and exercise with a particular focus on how to manage these aspects of health during the COVID-19 period. Click on the link below to download the document. If there is anything you would like to clarify or if you need any further information please feel free to contact us, we’re here to help! admin@bbsuk.org.uk