BBS Video Resources

BBS UK has a YouTube channel which has many personal perspectives and conference presentations. Access our feed below, or:
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Bardet-Biedl Syndrome UK

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Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome, their families, and carers in the UK. We are a user-led organisation, represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS.

Our aims are ‘to preserve and protect the health and promote the welfare of persons who have BBS and to advance the education of the medical and educational professionals and the public about BBS’.

We support over 640 people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK.

Further information can be found at www.bbsuk.org.uk

Bardet-Biedl Syndrome UK
Friends of BBS UK - BBS UK Spring 2025 newsletter

Friends of BBS UK - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLnhEUWM3NWI4YzJ3

Friends of BBS UK - BBS UK Spring 2025 newsletter

BBS UK Out and About - BBS UK Spring 2025 newsletter

BBS UK Out and About - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLmZaY2JRbFBDWGZN

BBS UK Out and About - BBS UK Spring 2025 newsletter

My Journey to the BBS International Conference - BBS UK Spring 2025 newsletter

My Journey to the BBS International Conference - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLkx2R0pFeHFiWUtn

My Journey to the BBS International Conference - BBS UK Spring 2025 newsletter

How Exercise Makes Me Feels Happier and Stronger - BBS UK Spring 2025 newsletter

How Exercise Makes Me Feels Happier and Stronger - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLk1CZjVWcE4tUl9r

How Exercise Makes Me Feels Happier and Stronger - BBS UK Spring 2025 newsletter

Talking to Children About Visual Impairment - BBS UK Spring 2025 newsletter

Talking to Children About Visual Impairment - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLk9CbDc5Y2pZVjQ4

Talking to Children About Visual Impairment - BBS UK Spring 2025 newsletter

Sailing Vision Week - BBS UK Spring 2025 newsletter

Sailing Vision Week - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLktaRUtaUUtkampN

Sailing Vision Week - BBS UK Spring 2025 newsletter

The New World of Gene Therapy - BBS UK Spring 2025 newsletter

The New World of Gene Therapy - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLlUyRFNzckJwS09n

The New World of Gene Therapy - BBS UK Spring 2025 newsletter

Running for Mary Michael's Marathon Mission - BBS UK Spring 2025 newsletter

Running for Mary Michael's Marathon Mission - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLlYxZXBCU3NkR19V

Running for Mary Michael's Marathon Mission - BBS UK Spring 2025 newsletter

Ireland Regional Group - BBS UK Spring 2025 newsletter

Ireland Regional Group - BBS UK Spring 2025 newsletter

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLm5HcUJJeTk2Q3M4

Ireland Regional Group - BBS UK Spring 2025 newsletter

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