BBS Video Resources

BBS UK has a YouTube channel which has many personal perspectives and conference presentations. Access our feed below, or:
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Bardet-Biedl Syndrome UK

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Bardet-Biedl Syndrome UK (formerly Laurence-Moon-Bardet-Biedl Society) is a voluntarily run registered charity, primarily supporting those with Bardet-Biedl Syndrome, their families and/or carers. The charity aims to raise awareness of this rare condition and produces information leaflets, newsletters and a report of the annual BBS Conference. Further information can be found at www.lmbbs.org.uk.

Bardet-Biedl Syndrome UK
Richard shares his personal perspective as a man with Bardet-Biedl syndrome.

51 views 11 October 2023 10:21 am

Richard shares his personal perspective as a man with Bardet-Biedl syndrome.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLjM3bk5EdkxGajJF

A Personal Perspective: Richard Zimbler

Azrat Mirza, a trustee for BBS UK, gives his perspective on being a Dad to a daughter with #bardetbiedlsyndrome #bbs

115 views 11 October 2023 10:21 am

Azrat Mirza, a trustee for BBS UK, gives his perspective on being a Dad to a daughter with #bardetbiedlsyndrome #bbs

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLkRKa1hXalVtWWxj

A Personal Perspective: Azrat Mirza

Doctor Elizabeth Forsythe invites those who attend the BBS clinics to take part in the BBS Registry.

44 views 11 October 2023 10:21 am

Doctor Elizabeth Forsythe invites those who attend the BBS clinics to take part in the BBS Registry.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLmhxUzUtb084WEdr

BBS Registry: Doctor Elizabeth Forsythe

Bendert de Graaf is the president of the Bardet-Biedl Stichting Association in the Netherlands, and board member of BBS International. He shares his family's story of having a child with #bardetbiedlsyndrome and why it's so important for the BBS community to work together internationally.

38 views 11 October 2023 10:21 am

Bendert de Graaf is the president of the Bardet-Biedl Stichting Association in the Netherlands, and board member of BBS International.
He shares his family's story of having a child with #bardetbiedlsyndrome and why it's so important for the BBS community to work together internationally.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLks3d0VaLVhVZExn

From feeling alone to making an effort to change the BBS world: Bendert De Graff

David Prince, a Microsoft Account Manager, gives an overview of some useful accessibility settings in Microsoft to help people with #visualimpairment or #learningdifficulties

311 views 11 October 2023 10:20 am

David Prince, a Microsoft Account Manager, gives an overview of some useful accessibility settings in Microsoft to help people with #visualimpairment or #learningdifficulties

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLmxaMWRORXJwaUNJ

Introduction to Microsoft and Accessibility: David Prince

Dr Jane Waite shares a presentation about how to maintain the wellbeing of someone with #acrossbardetbiedlsyndrome across their lifespan.

34 views 11 October 2023 10:20 am

Dr Jane Waite shares a presentation about how to maintain the wellbeing of someone with #acrossbardetbiedlsyndrome across their lifespan.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLjhmdWpvZzhFVTBN

Maintaining Wellbeing across the BBS lifespan: Dr Jane Waite

Ciaran Moy gives his Personal Perspective of being a Dad from Ireland with a young song who was recently diagnosed with #bardetbiedlsyndrom

66 views 11 October 2023 10:20 am

Ciaran Moy gives his Personal Perspective of being a Dad from Ireland with a young song who was recently diagnosed with #bardetbiedlsyndrom

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLnpaLWQxX3JhV2Vr

Personal Perspective: Ciaran Moy

Dr Elizabeth Forsythe speaks about obesity in BBS, gives an update on the clinical trial, and the BBS registry. Dr Lukas Foggensteiner speaks about current drug treatments for obesity. Sarah Flack speaks about the importance of diet and exercise.

83 views 11 October 2023 10:20 am

Dr Elizabeth Forsythe speaks about obesity in BBS, gives an update on the clinical trial, and the BBS registry.
Dr Lukas Foggensteiner speaks about current drug treatments for obesity.
Sarah Flack speaks about the importance of diet and exercise.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLktoX1REY0J4QW1n

Obesity and how we manage weight in BBS: Dr Elizabeth Forsythe, Dr Lukas Foggensteiner, Sarah Flack

Professor Phil Beales gives an update on research for #bardetbiedlsyndrome and Professor Helen May-Simera asks for participation in the research questionnaire.

111 views 11 October 2023 10:20 am

Professor Phil Beales gives an update on research for #bardetbiedlsyndrome and Professor Helen May-Simera asks for participation in the research questionnaire.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLkpIZGxOck91Yndz

Update on Research of BBS: Prof. Phil Beales & Research Questionnaire: Prof. Helen May-Simera

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