The Chris Humphreys Memorial Fund
Why do we have the Fund?
At BBS UK, we believe that the conference provides an invaluable opportunity for members to meet and connect with other people who have the syndrome, as well as having the opportunity to learn more about scientific developments and about living well with BBS.
The Chris Humphreys fund is there to support people who might otherwise find it difficult to attend.
Chris Humphreys was one of the founder members of BBS UK who organised the conference and supported BBS families for many years. Sadly, Chris passed away a few years ago and so the Chris Humphreys Memorial Fund has been created in her memory, in order to support people to attend the BBS UK weekend family conference.
What Will the Fund Cover?
The fund will cover the cost of up to two parents/carers (children go free) or one adult who has BBS and a personal assistant/carer, to attend the conference weekend.
This will include dinner, bed and breakfast on the Friday and Saturday nights.
How can I apply for support from the CHMF?
To apply for support, contact your Patient Liaison Officer directly, or send an email to [email protected].
A copy of a recent benefits letter, no more than 6 months old, will be required to support the application. If the letter does not confirm the applicant’s address, a utility bill will also be required.
What happens if I am offered support from the Fund?
If your application is successful, you will be directed to complete the BBS UK Conference Booking Form (if you haven't already done so) and to book your room at the hotel. You will need a card to guarantee your room, however your accommodation will be paid for by BBS UK.
The fund is limited and will be allocated on a first come first served basis.
We are able to receive applications to the Fund for as long as the Fund contains sufficient monies to be able to offer support.