BBSUK

Working to improve our service

BBS UK are committed to providing the best service possible to all those affected by the BBS. In order to achieve this, we are continually looking at ways we can improve, primarily to ensure we remain focussed on the needs of our communityvital part of this is ensuring that we listen to our members and use their feedback to direct our services effectively to reach the best possible outcome. 

A new membership questionnaire

As part of our service review this year, we have created a questionnaire designed to assess how Bardet-Biedl Syndrome affects those diagnosed and their quality of life.  It also aims to assess how well those affected have been supported by the charity where the gaps are and what they would like from BBS UK in the future.  This questionnaire is available for all our members to complete and we really hope as many of you as possible do so. We are so grateful for the support you continue to provide and cannot emphasise enough how valuable your suggestions and comments are for the development of the services we provide. The questionnaire can be completed online via Survey Monkey by clicking the link below or if you prefer you can download and print a paper copy and send it to us by post to 125 Poplar Avenue, Edgbaston, Birmingham, B17 8EH.

COMPLETE THE BBS UK ONLINE QUESTIONNAIRE HERE: https://www.surveymonkey.co.uk/r/BBSUKSurvey

A paper copy can be downloaded here: BBS UK Membership Survey

Protecting your information

This questionnaire does not ask for or record specific identifiable data, i.e. names and addresses, however we understand that some answers may inadvertently enable identification. Individual questionnaires will not be shared with any other party or used for any other purpose. The collated, anonymised results from this membership audit will be used to improve our services and will be shared with our membership. The completed questionnaires will be treated with the utmost care, all data will be stored securely and according to the requirements of the Data Protection Act 2018 and General Data Protection Regulation (GDPR) 

Contact us with your questions

We understand that some of these questions may be difficult to answer and may trigger uncomfortable or upsetting feelings or emotions and if that is the  case, please feel free to leave the question blank.  If you would like to talk to someone about this, please contact your Liaison Officer, Angela Scudder or Amy Clapp.  If you would like help completing the form, please contact Liz Loughery; all contact details can be found here: https://bbsuk.org.uk/contact/ 

 

*ON BEHALF OF US ALL AT BBS UK A HUGE THANK YOU FOR YOUR HELP AND SUPPORT*