Supporting BBS UK Helps To Support An Entire Community

You can help families affected by Bardet-Biedl syndrome

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Every donation helps

We accept donations via cheque, JustGiving, and PayPal, located at the top of this page. Even small donations make a huge difference to our Bardet-Biedl syndrome community.

Leave a legacy

Leaving a gift in your will enables BBS UK to support our community for years to come. Your contribution will help to make the future brighter for families throughout the UK impacted by Bardet-Biedl syndrome.

Become a Friend of BBS UK!

When you choose to give your time or donations regularly to our charity, you become a part of the amazing group of people, our Friends of BBS UK, who make our work possible.
Logo for Rare Not Alone campaign within a blue circle.

Join our 2024 effort to continue supporting BBS families!

Bardet-Biedl syndrome is a rare, life-changing genetic disorder. But we're here to show that even though it's rare, those affected are definitely not alone.

Much of our charity’s work aims to be there for individuals with BBS and their loved ones throughout life’s challenges. Now, we want to cheer on all the ways that those in our community are there for each other, while raising funds to help BBS UK’s work to continue. That's where YOU come in!

Fundraise for Bardet-Biedl Syndrome UK!

Fundraise your way!

By creating a JustGiving fundraising campaign page, you can take on any challenge or hold any event to fundraise for BBS UK!

Whether it’s skydiving, running a marathon, or asking event guests for a donation in lieu of gifts, JustGiving is a great way to support our work.

Get your involved!

Companies can come together and support our work.

Be it donating to participate in a Fancy Dress Friday, or taking on a challenge event as a team to fundraise for BBS UK, there are tons of ways that your work can support ours. Your company also might just offer to match any donations raised!

Sign up!

Whenever we have opportunities to support our work, we’ll reach out.

You’ll be the first to hear about chances to run marathons, contribute to campaigns, or attend events all aimed to keep our charity’s work going!

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