The BBS UK trustees sat at a table with a projector behind them. They are wearing BBS UK t-shirts.

The Annual General Meeting (AGM) of Bardet-Biedl Syndrome UK will be held online this year.

We’re inviting children with BBS in years 7-11 of secondary school to join us for an exciting weekend of activities and socialising in Birmingham this September!

Join us online for our annual conference! Expect updates on the research and management of BBS, invaluable personal perspectives from our members and an update on the work of BBS UK.

We need your help to review our Medical Information Handbook! We’re asking the whole of the BBS UK community including medical professionals to give us feedback.