Woman looking at the camera wearing a white and black striped top.

Welcome to our new Chair, Emma Hughes! Emma was voted in as Chair at the Annual General Meeting on 9th November 2024.

Five people are stood together smiling at the camera. Four of them are wearing BBS UK t-shirts.

Registration open for the BBS UK Annual General Meeting on 9th November 2024.

We’re inviting children with BBS in years 7-11 of secondary school to join us for an exciting weekend of activities and socialising in Birmingham this September!

Join us online for our annual conference! Expect updates on the research and management of BBS, invaluable personal perspectives from our members and an update on the work of BBS UK.

We need your help to review our Medical Information Handbook! We’re asking the whole of the BBS UK community including medical professionals to give us feedback.

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