Become a Friend

As a small but national charity providing support and information to over 1,000 people, including patients, their families, carers and professionals, BBS UK are reaching out for help, so that we can continue to offer free membership to everyone who needs it.

To become a Friend, you can choose from any of the below options:

  1. Donate monthly - regular donations provide a reliable source of income that we can direct to where it is most needed. It also allows us to plan ahead more effectively, ensuring that we can continue to offer the best care and support for all those affected by BBS.
  2. Collection box - donations can be collected using our official BBS UK collection box at fundraising events, or can be fixed securely in a shop or business.
  3. Fundraising events - organising a fundraising event is a great way to not only raise funds for the charity, but to also raise awareness of BBS.
  4. Gift in will - a donation to BBS UK can be left in a will.
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How to become a friend of BBS UK

Step 1. Click here to fill out our Application Form

Become a Friend of BBS UK

Please complete this form if you would like to become a Friend of BBS UK.

"*" indicates required fields

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Name*
Address*
How would you like to support BBS UK?
Please tick all that apply.

Gift Aid Declaration

By ticking the ‘Please claim Gift Aid on my donation’ box, I confirm that I am a UK Income or Capital Gains taxpayer. I have read this statement and want the charity named below to reclaim tax on the donation detailed overleaf, given on the date shown. I understand that if I pay less Income Tax / or Capital Gains tax in the current tax year than the amount of Gift Aid claimed on all of my donations it is my responsibility to pay any difference. I understand the charity will reclaim 25p of tax on every £1 that I have given.
Can BBS UK claim Gift Aid on your donations?*

Consent and contact preferences

The information provided by you on this form will be stored in accordance with GDPR/ Data Protection Act 2018 and Charity Policy and will be processed solely in connection with the Friends of BBS UK scheme. For more information contact [email protected] or read the BBS UK Privacy Notice available at www.bbsuk.org.uk.
Do you agree to allow BBS UK to add the information provided in this form to our database?*
Would you like to receive updates about BBS UK?*
Please tick all that you consent to.
How can we contact you?*
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If you would like more information about how we process your data, please see our privacy notice in the footer of our website.
Step 2. Set up a standing order with your bank (if applicable)

Account name: Bardet-Biedl Syndrome (UK)

Account number: 00906387

Sort code: 20 19 97

Use your name as the reference so we know who to thank!

What support does BBS UK provide?

Your contribution, however small, makes a huge difference to the individuals and families we help and enables us to continue to sustain a high level of support.

Examples of what we have achieved over the last 12 months includes:

  • Specialised NHS clinics providing support and advocacy services: Overview of BBS Clinics Service - BBSUK
  • Provision of an Advice Service
  • Support for families with accessing local authority support, benefits and housing applications and Education, Health and Care Plans
  • Provision of newsletters and information booklets: BBS UK Publications - BBSUK
  • Support for BBS research programmes including those looking at mental health and wellbeing, kidney function and sight loss: Research - BBSUK
  • Organised subsidised events including the annual conference, activity and social events
  • Support for newly diagnosed families with information and regular contact
  • Provision of support, advice and information via our social media channels

What do BBS UK members say about us?

We are a lifeline to so many people and it is vital we can continue to offer this kind of support.

Our members told us recently what the charity means to them; their words are testament to the impact we have and would like to continue to have in the future:

Fantastic support in the early days of diagnosis!

The charity welcomed us in with open arms and it was the first time ever that we didn't feel alone or judged.

The warm supportive family network made me feel confident and accepting of living with BBS. It has also helped me develop many life skills. My life would not be as joyous without this charity.

We were warmly welcomed, and everyone involved with the charity could not have been more helpful. The conferences are brilliant, really informative but fun as well. BBS UK has shown us that we are not alone, the charity and everyone involved and associated treat you like extended family and without all of you we would be lost.

BBS UK helped me to not have to pay the extra bedroom tax and have my hours increased for my direct payments, I have always had great support from the BBS UK team.

The best thing we look forward to is the BBS Conference and the BBS Activity weekend. My children love it and it makes them feel very special. Thank you all so, so much and please continue what you are doing so every family can stay happy.