BBS Video Resources

BBS UK has a YouTube channel which has many personal perspectives and conference presentations. Access our feed below, or:

Click here to visit our YouTube Channel

Bardet-Biedl Syndrome UK

Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome, their families, and carers in the UK. We are a user-led organisation, represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS.

Our aims are ‘to preserve and protect the health and promote the welfare of persons who have BBS and to advance the education of the medical and educational professionals and the public about BBS’.

We support over 640 people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK.

Further information can be found at www.bbsuk.org.uk

121 views 25 June 2024 3:02 pm

Professor Claire Hogg's presentation on 'Respiratory Ciliopathy and BBS' at the BBS UK Conference 2024 on Saturday 8th June 2024.

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Respiratory Ciliopathy and BBS - Prof Claire Hogg - BBS UK Conference 2024

128 views 21 June 2024 11:49 am

Dr Shehla Mohammed's 'Introduction to BBS' presentation from the BBS UK Conference on 8th June 2024.

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Introduction to BBS - Dr Shehla Mohammed - BBS UK Conference 2024

87 views 18 June 2024 12:07 pm

Laura Dowswell closes the BBS UK 2024 Annual Conference with thanks to panellists and attendees on Saturday 8th June 2024.

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Closing remarks Laura Dowswell - BBS UK Conference 2024

106 views 18 June 2024 12:07 pm

A Q&A session with Dr Elizabeth Forsythe, Dr Arlene Drack, Dr Shehla Mohammed and Prof Phil Beales at the BBS UK Conference 2024 on Saturday 8th June 2024.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLnJ1N3kzRXJobDZJ

Q&A with Dr Elizabeth Forsythe, Dr Arlene Drack, Dr Shehla Mohammed and Prof Phil Beales

214 views 18 June 2024 12:06 pm

Dr Arlene Drack's presentation on 'BBS Gene Therapy & Clinical Trials' from the BBS UK Conference 2024 on Saturday 8th June 2024.

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BBS Gene Therapy & Clinical Trials - Dr Arlene Drack - BBS UK Conference 2024

199 views 18 June 2024 12:05 pm

Dr Elizabeth Forsythe's 'Update on Setmelanotide' presentation at the BBS UK Conference 2024 on Saturday 8th June 2024.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLnNweUVtbXhpbUxr

Update on Setmelanotide - Dr Elizabeth Forsythe - BBS UK Conference 2024

121 views 18 June 2024 12:04 pm

Bilaal Ali shares his personal perspective of living with BBS during the BBS UK Conference 2024 on Saturday 8th June 2024.

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A Journey of Resilience and Triumph - Bilaal Ali - BBS UK Conference 2024

92 views 18 June 2024 12:03 pm

Kelly Slater's presentation on Irritable Bowel Syndrome IBS and BBS at the BBS UK Annual Conference 2024 on Saturday 8th June 2024.

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Irritable Bowel Syndrome IBS and BBS - Kelly Slater - BBS UK Conference 2024

47 views 18 June 2024 12:03 pm

Samantha Serido gives a Fundraising Roundup for the BBS UK Conference 2024 on Saturday 8th June 2024.

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YouTube Video VVVPMlM2SXpxb2EwRkZJTUVwc0IzWGlBLk1SdFRsQXd2RVU4

Fundraising Roundup - Samantha Serido - BBS UK Conference 2024

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BBS Video Resources

BBS UK has a YouTube channel which has many personal perspectives and conference presentations. Access our feed below, or:

Bardet-Biedl Syndrome UK

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