BBS Video Resources

Emma Hughes, Chair of the board of trustees for BBS UK, welcomes attendees to the 32nd BBS UK Annual Conference.

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Dr Emilia Kieckhöfer, Julia Günzler from Cologne, Germany, as well as Jannis von Spreckelsen, Viola Kretschmer from Mainz, Germany give a tactile and hands-on accessible science presentation.

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Sarah Flack shares useful tips and guidance on diets for people living with Bardet-Biedl syndrome at the BBS UK Conference 2025.

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Suzy McDonalds gives a talk on habilitation and what to expect from your child's mobility and independence programme.

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Paula McGrath and Mark Baxter from Retina UK give an overview of the services they provide, including peer support.

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Anna Smith from Rareminds and Marie McGee, Transition Co-ordinator at Birmingham Children’s Hospital give a presentation on managing transition from childhood to adulthood for young people living with Bardet-Biedl syndrome.

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Emily Bartell shares her personal perspective of living with Bardet-Biedl syndrome at the BBS UK Conference 2025.

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Dr Gabrielle Blumer and Dr Emma McGibbon give a presentation on the Cognitive, Behavioural and Social Presentations in Children with Bardet-Biedl syndrome at the BBS UK Conference 2025.

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Kenneth Michie and Dr Emma McGibbon give a presentation about our relationship with food.

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