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Funding from BBC Children in Need

Posted on 30 May 2025

We’re thrilled to share that BBS UK has been awarded a 3-year grant from BBC Children in Need!

This vital funding will support our ongoing work with children and young people living with Bardet-Biedl syndrome (BBS) across the UK.

BBS is a rare genetic condition, and because families are spread far and wide, our services are designed to reach every corner of the country—whether that’s through in-person visits, online support, virtual events, or local networks like our Ireland Regional Group.

From the moment of diagnosis through every stage of life, we’re there to offer practical help, emotional support, and community connection.

Thank you, BBC Children in Need, for believing in our mission and helping us make a real difference.

🎉 We’re thrilled to share that BBS UK has been awarded a 3-year grant from BBC Children in Need! This vital funding will support our ongoing work with children and young people living with Bardet-Biedl syndrome (BBS) across the UK. BBS is a rare genetic condition, and because families are spread far and wide, our services are designed to reach every corner of the country—whether that’s through in-person visits, online support, virtual events, or local networks like our Ireland Regional Group. From the moment of diagnosis through every stage of life, we’re there to offer practical help, emotional support, and community connection. Thank you, BBC Children in Need, for believing in our mission and helping us make a real difference.
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