We’re excited to launch BBS UK Challenge Events.

This is your chance to take on a personal challenge while supporting families affected by Bardet Biedl syndrome.

Whether you’re looking to run a marathon, walk a scenic route, brave a bungee jump, or take on a family-friendly inflatable course, there’s a challenge for every energy level.

Explore your options and book your event through our new and improved Support Us page.

You’ll also find everything you need to:

• Sign up for a challenge event, from marathons to walks, to bungee jumps and more
• Set up a JustGiving fundraising page
• Access a fundraising pack
• Claim a free BBS UK t-shirt when you pledge to raise over £100
• Get support whether you’re using one of our suggested events or bringing your own

Why Get Involved?

Every pound you raise helps us deliver vital support services, awareness work, and family resources for those living with Bardet Biedl syndrome.

We’ve seen first-hand how impactful these events can be—past fundraisers have raised thousands while achieving incredible personal goals. Now it’s your turn.