I’m Abbie and mum to Jessica who was diagnosed with BBS in 2014. We live in Brighton and I have worked in the charity and voluntary sector since 2006.
Since Jessica’s diagnosis everything has made more sense to us. We have been welcomed into the BBS family and have truly embraced it. In 2015 I was diagnosed with multiple sclerosis and I realised then that I have a lot more to give in many different ways and I would like to support BBS UK in any way I can for as long as I can as it is such a vital support network to myself and Jessica and to us all.
I have valued learning about BBS UK and very much enjoy working alongside a great team of trustees and employees for an invaluable Charity.