Click below to read the latest BBS UK newsletter (in pdf format). A text-only version for those with screen reading software as well as an audio transcription will be posted week commencing 21st December 2020.

BBS UK Winter Newsletter 2020

You can catch up on old news/newsletters you may have missed by selecting the buttons below.

Introducing the BBS UK Newsletter

The BBS UK Newsletter enables us to keep members informed and supported, and hopefully, ease the feelings of isolation that can occur with such a rare syndrome. It's published twice yearly and covers a wide range of issues for all those affected by BBS. Our Newsletters are free to members and over 1000 copies go out each year to patients, their families, their carers and professionals. It covers/provides: 

  • Information on our projects and services
  • Family support
  • Fundraising endeavours
  • Events
  • Conferences and research
  • Our Young People’s Group
  • Personal stories from our members
  • Information on health and well being

If you have news or information you think we might like to include in the newsletter please get in touch by email on We are also glad to get feedback and ideas for articles.