Click below to read the latest BBS UK newsletter (in pdf and word/plain text format). For those that have requested an audio transcription please be advised this has been posted and should reach you early week commencing 10th May 2021.

BBS UK Spring Newsletter - Pdf format

BBS UK Spring Newsletter - Word format

You can catch up on old news/newsletters you may have missed by selecting the buttons below.

Introducing the BBS UK Newsletter

The BBS UK Newsletter enables us to keep members informed and supported, and hopefully, ease the feelings of isolation that can occur with such a rare syndrome. It's published twice yearly and covers a wide range of issues for all those affected by BBS. Our Newsletters are free to members and over 1000 copies go out each year to patients, their families, their carers and professionals. It covers/provides: 

  • Information on our projects and services
  • Family support
  • Fundraising endeavours
  • Events
  • Conferences and research
  • Our Young People’s Group
  • Personal stories from our members
  • Information on health and well being

If you have news or information you think we might like to include in the newsletter please get in touch by email on We are also glad to get feedback and ideas for articles.