About the event


The BBS UK Annual Conference returns to the Hilton Hotel, Northampton, across the weekend of 9th-11th September 2022

For those who will experience this opportunity for the first time, we cannot wait to welcome you to the first of what we hope will be many conferences. The weekend is packed with new experiences from the moment you walk through the door, where your friendly BBS UK team will welcome you. The Hilton Hotel, Northampton, centrally located for rail, road and air travel, has been home to our Conferences for over 20 years, many of the staff have been with us from the beginning and pride themselves on their service and exceptional attention to detail throughout the weekend.

Guests usually arrive Friday afternoon/evening and enjoy the opportunity to relax in an inclusive and welcoming environment.  The hotel has a lovely pool, spa and gym area, a restaurant and bar, and a large bright and airy lobby/lounge served by a coffee bar.

The main conference programme takes place on the Saturday and once again there will be an excellent mix of speakers and facilitators including Professor Beales, who will give an overview of research and development in the world of BBS. Throughout the weekend there will be the usual opportunity for private and workshop discussions with experts in the research and management of BBS as well as members of the various BBS Clinics Teams and BBS UK. For our young members, there will be a fun-filled day trip to Conkers Discovery Centre to look forward to (for more info CLICK HERE) and for the little ones a pop-up Crèche.

We are extending our programme into Sunday morning for the first time this year, and will round off the weekend with a sandwich platter lunch at 1pm, before we say our goodbyes once again.

BBS UK provide the Saturday conference, kids activities and lunch free of charge to those who have BBS and their immediate family/carers.  This doesn’t include accommodation costs, which guests must book and pay for directly with the Hilton Hotel (or a hotel of their choice).

BBS UK are providing a limited number of ‘kids go free’ places (for those who have BBS and their siblings, 17yrs and under) at the Hilton Hotel, Northampton and have also secured a competitive rate on a dinner, bed and breakfast basis.

This year, BBS UK are launching the Chris Humphreys Memorial Fund, to support first time delegates with accommodation costs, who would otherwise find it difficult to attend. For more information, CLICK HERE


Conference Programme

We are excited to share our draft Saturday/Sunday conference programme - please note there may be some minor changes made prior to the event.  

To view the BBS UK Conference Draft Programme in PDF, click HERE

To view the BBS UK Conference Draft Programme in WORD, click HERE


Booking Information

We cannot wait to welcome you to the BBS UK Annual Conference, booking is in two parts:

  1. Book your place at the BBS UK Conference
  2. Book and pay for your hotel accommodation

Step 1: Book your place at the BBS UK Conference

It is important that you book your place with BBS UK at the same time as booking your hotel accommodation, for administration / organisation purposes.

Booking forms can be completed online:

General Delegates: BBS UK Conference 2022 BOOKING FORM

Professionals:          Professionals BOOKING FORM

If you need support with completing a booking form please contact Léonie Hudson: Tel: 07510 384242 or email:


Delegates Fees

The BBS UK Saturday Conference programme including buffet lunch, or organised trip to Conkers Activity Park in Derbyshire is free of charge for:

  • Individuals who have BBS 
  • BBS Family Members (Parents, Siblings, Grandparents)      
  • 17yrs + Under (Family members only)

Donations are very welcome via the PayPal link below.

For all other delegates the cost is £40 payable at time of booking


Booking payments and donations can be made in the following ways:


Via Bank Transfer: Bardet-Biedl Syndrome UK (BBS UK); Sort Code: 20-19-97  Acc No: 20368253


Step 2: Book your hotel accommodation: For more information, click HERE


Children and Young People's Trip to Conkers!

For information about the children and young people's trip to Conkers Discovery Centre,  CLICK HERE


Speaker Profiles

Click HERE to read the profiles of those who will be presenting at the BBS UK Conference 2022.


Getting Here

For information about the Hilton Hotel, Northampton, including how to get there, CLICK HERE:

By Rail: Northampton Station is approximately 15 minutes from the hotel and is serviced by a taxi rank; CLICK HERE for more information,.

By Road: The hotel is accessed directly off the A45, just off the M1; CLICK HERE to view on Google Maps.  The postcode is: NN4 0XW

By Plane: Birmingham Airport is approximately 50 miles (around 1hr by car) from the Hilton, Northampton, via the M6 and M1

Can't wait for Conference 2022?

Why not take time out to listen to some of last year's virtual conference presentations:

Day 1 Professionals Conference: Fri 14th May

Day 2 BBS UK Conference: Sat 15th May