Small Charities Week 2021

BBS UK will be supporting Small Charity Week 2021 which kicks off with I ♥ Small Charities Day on 14th June. This day is a wonderful opportunity for us to raise awareness of the work of BBS UK and to encourage commitment from members to provide their much-needed support.

So how can YOU get involved? Well, it’s easy:

  1. Print and download the 'I love Small Charities' Poster, click here: I Love BBS UK Because poster 2021
  2. Fill the poster in explaining why you love BBS UK
  3. Take a photo of yourself holding up the completed poster and simply post it to our Facebook page or group ON MONDAY 14TH JUNE including the #ILoveSmallCharities hashtag so we can track and retweet!

Liz Loughery, our Office Manager has done the first one for you as an example, see below.







Thank you for your support. More information on Small Charities Week and how you can support coming soon!

Best Bloomin' Sunflower Competition 2021

We are looking for the Best Bloomin Sunflower of 2021, to raise funds for BBS UK.

To take part all you need do is grow a sunflower from the BBS UK seed packs (that we will send you), and/or write an eight-line poem about sunflowers. If you can send us photos of your sunflowers and poems by September 30th 2021 you will be entered into the competition of which we will choose two winners, one for the Best Bloomin’ Sunflower of 2021 and one for the Best Bloomin’ Sunflower Poem of 2021.

As part of the competition, we are also providing sunflower colouring-in pages - we’d love to see your photos of these too! You can share via our Facebook group using the hashtag #BBSUKBestBloominSunflower or send

We’ll provide regular updates of your plants’ growth and will announce the winners with their sunflower photos (and the measurements) on this page and on Facebook.

Subject to demand, we will produce a set of notelets with the winning photo and poem and will make them available for purchase after October 2021.


If you are interested in taking part, please email: with your name and address and she will organise the postage of your pack.

Donations will be gratefully received. Suggested amount is £5.00 per entry. Donations can be received via Bank Transfer to the BBS UK bank account:

Sort code: 20-19-97, Account Number: 20368253, Reference: Sunflower

Or via the BBS UK Just Giving page: JustGiving

Stocks are limited, so don’t delay!

Please share your pictures on our Facebook page and group using #BBSUKBestBloominSunflower

Other fundraising events for BBS UK

Here are some tips and ideas to help you or get you started. If you’d like to share your fundraising story and have any photos of your event please keep in touch with the fundraising team at We’d love to hear from you. You can also request BBS UK merchandise to help your fundraising event, these include collection buckets, t-shirts and wristbands. If you would like any of these items please contact Christine Saxon on the fundraising email address.

Challenges and Events

Some fundraising may take you to great heights or stretch you to your limits. Are you looking for a challenging way to raise funds? Why not sign up for something different next year. Take part in a sponsored cycle ride, walk, marathon run, sky dive or challenge of your choice to raise funds or become a BBS UK hero, all sorts of people do heroic or just plain silly activities to help raise funds; whatever you do you are a BBS UK hero.

Download our fundraising information sheets to inspire:

Just Giving

Online sponsorship is a very straightforward way to promote and collect funds. If you are organising an event we recommend It is easy to set up your fundraising page and share with your family and friends. You can also donate directly to BBS UK through our own fundraising page

Match Giving

If you are doing a fundraising event for us don’t forget to find out if your place of work offers a match giving scheme. Many companies will offer to match pound for pound against what you raise. If they don’t they might consider supporting you with a donation instead.

Gift Aid

Remember your sponsors can register their donation to claim gift aid to make your donation worth much more – for every pound donated, BBS UK can claim an extra 25p from Inland Revenue*.

*To claim gift aid, we need the names and addresses of your sponsors and they must be UK tax payers. We will take this information from your paper sponsorship forms, or if you have set up online fundraising with Just Giving the gift aid is claimed automatically.

To raise money for BBS UK, simply decide what event you are going to do or organise and then use our BBS UK sponsorship form. Alternatively you can set up your own sponsorship form or ask for donations online through Just Giving.

Corporate Giving

Do you run your own business or would your employer be interested in Corporate Giving?

If so, listen up or spread the word. Your company can make a real difference to BBS UK. Companies and their employees can support our charity in a range of different ways that not only help us to help children and adults with Bardet-Biedl Syndrome and their parents and carers but also provide rewarding development opportunities for the staff that get involved. We can work in partnership with employees and businesses in many different ways, for instance you could help:

  • Encourage staff to get involved in fundraising events to support our work
  • Make donations to help fund our projects and services with disabled children and adults
  • Engage staff in a range of volunteer roles for the charity
  • Choose us as your Charity of the Year

The benefits to your Company are that we can help you achieve your business and corporate social responsibility (CSR) objectives. Some of the benefits to you would be:

  • Additional marketing routes for your brand and products
  • Excellent opportunities for your employees to engage in team building activities and events, raising money to help children and adults with Bardet-Biedl Syndrome
  • Enhanced image among your shareholders, customers and your community

We can work closely with you to determine the activities that will work best for your company. For more information on how your company could work with BBS UK, please get in touch with the fundraising team.