The BBS UK  Annual General Meeting (AGM) of Bardet-Biedl Syndrome UK (BBS UK) is to be held on Tuesday 13th July 2021 from 1pm to 2pm via a video Zoom meeting. All CIO members will automatically receive the agenda, proxy notice and instructions about how to access the meeting. If you are a CIO member and you haven't received this information then please contact and she will be able to assist you.

During the AGM trustees update members on the activities, achievements and progress of the Charity over the last year. There is also an opportunity for members to vote on who they would like to represent them on the Board, by electing the honorary officers and trustees.

AGM Registration

To confirm your attendance and to receive the Zoom link to join Register HERE 

AGM Meeting Minutes

The minutes of the 2020 AGM can be downloaded here: BBS UK AGM Minutes 28th Sep 2020

If you have any questions about the 2020 minutes or 2020 Annual Report please send them to in advance as questions will not be taken on the day. The deadline for questions is 5pm on 6th July.

Annual Report 2020

Read our latest annual report and financial accounts for an overview of all our work and achievements in 2020.

We are ever grateful for the dedication and generosity of everyone who has supported us in the last year - to all of our members, employees, volunteers, trustees and directors we would like to say a huge thank you, we couldn't do it without you.

To access the report click on the links below to download:

BBS UK 1181244 Annual Report and Accounts 2020

Annual Reports from previous years