I’m Abbie and mum to Jessica who is 19 years old. She was diagnosed with BBS7 five years ago and ever since then everything has made more sense to us. We have been welcomed into the BBS family and have truly embraced it. In 2015 I was diagnosed with multiple sclerosis and I did and still am evaluating my path. I have realised that I have a lot more to give in many different ways and I would like to support BBS UK in any way I can for as long as I can as it is such a vital support network to myself and Jessica and to us all.
I live in Brighton and I have worked in the charity and voluntary sector for twelve years. I was asked o be an observer on the Board of Trustees back in June 2015 and I have valued learning more about the charity and very much enjoy working alongside a great team of trustees and employees for an invaluable Charity.