BBSUK

We have gathered together a collection of useful links and resources for other charities and organisations which offer information, advice and support for adults, young people and their families and carers.

GOV.UK

For benefits information regarding Disability Living Allowance, Personal Independence Payment, Carers Allowance, Income Support and other available benefits.

www.direct.gov.uk

CITIZENS ADVICE

It's important to make sure that you get all the help that you're entitled to. Citizens Advice website can give you information on benefits and tax credits if you are working or unemployed, sick or disabled, a parent, a young person, an older person or a veteran.

www.citizensadvice.org.uk/benefits

TURN2US

Turn2us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.

www.turn2us.org.uk

DISABILITY GRANTS

This is a directory and search tool to find appropriate grants for families and individuals.

www.disability-grants.org

THE MONEY ADVICE SERVICE

Charitable grants for ill or disabled people. A grant is a financial donation that you don’t have to repay. Many UK charities and trusts provide grants to help with the extra costs of ill health or disability. Find out what grants are available and how to apply.

www.moneyadviceservice.org.uk/en/articles/charitable-grants-for-ill-or-disabled-people

GO HENRY

The goHenry pocket money card is a safe way for your child or young person to learn money management. For children aged 6-18 years.

www.gohenry.co.uk

IT BUDDY

Available across the country in local libraries to help support with the completion of online and paper forms. Contact your local council or library for more information and to make an appointment.

GENETIC ALLIANCE UK

Genetic Alliance UK work on a variety of issues that families and individuals with genetic conditions face. They provide information, support families and influence the services needed by these patients.

www.geneticalliance.org.uk

RARE DISEASE UK

Rare Disease UK (RDUK) provides a united voice for the rare disease community by capturing the experiences of patients and families. They work with their supporters to raise the profile of rare diseases across the UK. They seek to bring about lasting change offering better health and quality of life for individuals and families affected by rare diseases.

www.raredisease.org.uk

NATIONAL KIDNEY FEDERATION

NKF is the largest kidney patient charity in the UK. Run by kidney patients, for kidney patients.

www.kidney.org.uk

BRITISH KIDNEY PATIENT FEDERATION

Is a leading kidney patient support charity providing advice, support and financial assistance to thousands every year.

www.britishkidney-pa.co.uk

DIABETES UK

Can offer information and support to those affected by diabetes. Their wide range of products and services are designed to help you manage your diabetes, whatever support you need, whether you're looking for insurance, information, or just someone to talk to.

www.diabetes.org.uk

ACTION FOR BLIND PEOPLE

Action has merged with RNIB. On 1 April 2017, Action for Blind People merged with RNIB. This allows them to help more blind and partially sighted people by combining their services, knowledge and expertise within one charity. Action’s vital work will continue through RNIB.

RNIB

The Royal National Institute of Blind People (RNIB) is the UK’s leading charity supporting blind and partially sighted people. They offer practical and emotional support to those that need them, so they can continue living life to the full.

www.rnib.org.uk

RSBC

The Royal Society for Blind Children (RSBC) believes in a better life for blind children. Their mission is to make sure every single blind child has the self-belief and skills to fulfill the potential they’ve got. Through their services, they’ll learn new skills, make friends and experience moments that will give them the confidence to believe they can achieve.

www.rsbc.org.uk

THE GUIDE DOGS FOR THE BLIND ASSOCIATION

Aim to provide people with sight loss with the support they need to be able to move around safely and confidently, to get out of their homes and be able to live life the way they choose. They are best known for achieving this through their world-famous guide dogs. I recent years they have extended their work to other areas to help people with sight loss tackle obstacles they face on a daily basis.

www.guidedogs.org.uk

VICTA

VICTA supports children and young people who are blind or partially sighted and their families across the UK. If you are the parent of a blind or partially sighted child or young person or you are visually impaired yourself and under the age of 29 then VICTA can help.

www.victa.org.uk

LOOK-UK

LOOK-UK supports young people and families living with vision impairment.

www.look-uk.org

SIGHT SUPPORT DERBYSHIRE

A charity providing services, support, advice and information to around 9,500 local people who are registered blind or partially sighted. Sight Support Derbyshire offer a range of support to adults and children, through a range of services, including: Hospital Services, Sight Loss Information Sessions, Low Vision Aid Services, Rehabilitation Services, Resource Centres, Sports and Leisure Activities, and Children and Young Peoples Services.

www.sightsupportderbyshire.org.uk

ACCESS CARD

The Access Card is printed with symbols to show your disability and to highlight the barriers you face and the reasonable adjustments you might need, so you don’t need to keep explaining. Based on your rights under the Equality Act and providers’ responsibilities, the card informs providers quickly and discreetly about the support you need and may gain you access to things like concessionary ticket prices and complex reasonable adjustments without having to go into loads of personal detail. The card costs £15 for three years.

www.accesscard.org.uk

THE MAYPOLE PROJECT

The Maypole Project provide a lifeline of support for children with complex and life threatening illnesses and their whole family. They provide a range of support to parents from diagnosis through treatment and beyond and provide emotional support to the whole family including siblings and grandparents. Tel: 01689 889 889 helpline@themaypoleproject.co.uk https://www.themaypoleproject.co.uk/

www.themaypoleproject.co.uk

CONTACT - FOR FAMILIES WITH DISABLED CHILDREN

Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. They support families with the best possible guidance and information and bring families together to support each other.

www.contact.org.uk

SENSE

Sense is a national charity that supports people who are deafblind, have sensory impairments or complex needs, to enjoy more independent lives.

www.sense.org.uk

GOV.UK - DOCUMENTS TO SUPPORT FAMILIES

This link will take you to the government website that has all the main documents to support families with children/YP that have medical needs/and/or special educational needs.

The third document link on the website takes you to the new government guidance for a multitude of things, including the new Disability Code of Practice and Early Years guidance. This is a good starting point.

www.gov.uk/government/publications/supporting-pupils-at-school-with-medical-conditions--3

GOV.UK - IMPORTANT CHANGES TO THE SEN & DISABILITY SUPPORT SYSTEM

A series of leaflets explaining important changes to the SEN and disability support system, for children and young people. These changes start on 1 September 2014. The leaflets cover the following areas: making decisions about your support; the local offer; education, health and care (EHC) plans; post-16 options for support.

www.gov.uk/government/publications/sen-and-disability-support-changes-information-for-young-people

INDEPENDENT PARENTAL SPECIAL EDUCATION ADVICE

Independent Parental Special Education Advice (known as IPSEA) is a registered charity (number 327691). IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.

www.ipsea.org.uk

INFORMATION, ADVICE & SUPPORT SERVICES NETWORK

The Information, Advice and Support Services Network (IASS Network) supports and promotes the work of Information, Advice and Support (IAS) Services across England. They are based at the Council for Disabled Children.

IAS Services have a duty to provide information, advice and support to disabled children and young people, and those with SEN, and their parents. They are a statutory service which mean there has to be one in every local authority.

www.councilfordisabledchildren.org.uk

PROSPECT PARENT PARTNERSHIP

Parent partnership gives free information, advice and support to parents of children with Special Educational Needs enabling parents to make informed decisions.

www.prospect.org.uk

AMAZE

Amaze is a charity that gives information, advice and support to parents and carers of children and young people with special educational needs and disabilities (SEND).

www.amazebrighton.org.uk

THE NATIONAL AUTISTIC SOCIETY

Are the leading UK charity for autistic people (including those with Asperger syndrome) and their families. They provide information, support and pioneering services, and campaign for a better world for autistic people.

www.autism.org.uk

DYSPRAXIA FOUNDATION

The Dyspraxia Foundation is a country-wide charity and is committed to making the teaching and medical professions more aware of dyspraxia and to spread understanding of how those who have the condition can be helped.

www.cdyspraxiafoundation.org.uk

I CAN

I CAN Help is a range of information services that provide help and advice to parents and practitioners about speech, language and communication. It includes a free call-back service with a speech and language therapist, Talking Point - the website dedicated to speech and language, and I CAN's assessment services.

www.ican.org.uk

TALKING POINT

Talking Point is a website all about children’s speech, language and communication. It is designed for parents, people that work with children and children and young people themselves. It contains everything you need to know about supporting children’s speech and language development.

www.talkingpoint.org.uk

AFASIC

Afasic supports parents and carers with children and young people who have difficulties with listening, talking and understanding others.

www.afasic.org.uk

THE MAKATON CHARITY

The Makaton Charity exists to ensure that everyone living with learning or communication difficulties has the tools and resources they need to communicate.

www.makaton.org

RENAISSANCE LEGAL

Specialises in working with families and carers of disabled and vulnerable individuals; helping them plan effectively for the future with Wills, Trusts, Powers of Attorney, Court of Protection applications and Inheritance Tax Planning. Renaissance Legal has an unrivalled reputation for their work in the disabled and vulnerable community. The growing team prides itself on truly understanding the unique needs of families and disabled individuals – all of whom are dealing with complex, often challenging lives, where it’s vital that they understand their options.

www.renaissancelegal.co.uk

BRITISH BLIND SPORTS

The work of the charity enables blind and partially sighted people to have the same opportunities as sighted people to access and enjoy sport and recreational activities in the UK.

www.britishblindsport.org.uk

BRITISH BLIND SPORT – ARCHERY

www.bbsarchery.org.uk

PARASPORT

Identify which sport is right for you and where you can go to play it!

www.parasport.org.uk

DISABILITY SPORT WALES

Disability Sport Wales provides over a million opportunities for disabled people to get involved in sport and physical activity.

www.disabilitysportwales.com

DISABILITY SPORT FINDER

Find fun and engaging activities to suit all ages and abilities in your local area.

www.disabilitysportfinder.org.uk

SCOPE

Useful links to sport

www.scope.org.uk

ACTIVITY ALLIANCE – DISABILITY INCLUSION SPORT

Inclusive Gym search

www.activityalliance.org.uk

Find Events and classes - If you are looking for an activity in your area

www.activityalliance.org.uk

ENGLAND ATHLETICS

Find an athletics club

www.englandathletics.org

Lists governing bodies and contacts for these sports

www.englandathletics.org

FA

From grassroots to the elite game – take part in disability football.

www.thefa.com

METRO BLIND SPORT

Metro is a London-based charity; our aim is to open doors to sport for all vision impaired people, regardless of age or sporting ability.

www.metroblindsport.org

TENNIS FOUNDATION

Tennis Foundation is UK wide and is governing body for vi tennis. It sets out all the venues that can be located nearby.

www.tennisfoundation.org.uk

BLIND CRICKET ENGLAND & WALES

BCEW have been working in partnership with British Blind Sport and the England and Wales Cricket Board since 2006 to deliver competitive cricket for those who are blind or partially sighted, running national and international competitions.

www.bcew.co.uk

MERLIN’S MAGIC WAND

Merlin's Magic Wand is a children's charity that supports children facing challenges of serious illness, disability or adversity around the world. The Charity provide tickets and fund travel grants to families to enjoy their day at a Merlin Entertainments’ attractions, such as Legoland theme parks, Sea Life Centres, and Madame Tussauds.

www.www.merlinsmagicwand.org

MAX CARD

A discount card for foster families and families of children with additional needs. Families simply show their Max card upon entry to a venue in order to obtain free or discounted admission. Email hello@mymaxcard.co.uk or phone 01133 947 951 or see your Local Offer.

PHAB

PHAB’s mission is to inspire and support children, young people and adults with and without disabilities to make more of life together - breaking down community barriers, reducing social isolation, and creating opportunities for disabled people to enjoy the same activities and challenges as, and alongside, those without a disability.

www.www.phab.org.uk

CEA CARD

A national card scheme developed for UK cinemas by the UK Cinema Association (UKCA). The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.

www.www.ceacard.co.uk