Making a donation to BBS UK will help make sure we can continue our vital work

All those diagnosed with BBS and their families experience continual times of transition. As the syndrome is multi characteristic there are many periods of change throughout their lifetime with health progression and ongoing diagnosis from new or associated medical problems. There is little knowledge and information at a local level about this syndrome and individuals often struggle with their local services and support regarding their disability, health, social, welfare and educational needs. The charity relies on donations and fundraising from our members and every penny really does support our projects, services for those at the heart of BBS. You don’t have to dig in your pocket to make a difference.

Donate directly to BBS UK through our own fundraising page

Just Giving automatically adds 25% Gift Aid free from the tax man if you are a UK taxpayer and this comes directly to us. That means for every £1 that you donate, we get 25p.

There are loads of FREE ways that you can help us. You can now support Bardet-Biedl Syndrome UK every time you shop online through Give as you Live. You can shop online at over 4000 retailers where a percentage of what you spend can be turned into a donation for us, and it doesn’t cost you a penny so you are helping us for free. Stores including Amazon, Debenhams, John Lewis, Sainsbury’s and many more have all signed up with Give as you Live to turn your spend into a free donation for us.Sign up today to help us support people living with BBS.

It’s easy to get started all you need to do is follow these simple steps:

Click on the link

Click the big blue “sign up as a shopper” button

Enter your first name and email address

Then you can either shop at retailers by visiting

There are loads of FREE ways that you can help us. You can now support Bardet-Biedl Syndrome UK every time you shop online through Easyfundraising. Use easyfundraising to shop with over 3,300 retailers including Amazon, Argos, John Lewis, ASOS,, eBay, Boden, and M&S. Every time you shop, you’ll raise a free donation for BBS UK every time, it’s that easy!

Find out more:


Leaving a Legacy


Leaving a legacy will cost nothing today, but by leaving a gift in your will, this will help BBS UK continue to provide important services for years to come. For your will to be valid and to ensure that your wishes are carried out, we would always recommend that you seek the advice of a solicitor.

If you would like more information please contact us and we can help support you with creating a legacy. Thank you from all the people at the BBS UK who will benefit in the future from your thoughtfulness.